People with FSHD, living full lives. They aren’t my relatives, yet in their face gestures I recognize myself.
Help me make this list longer by:
- Sending links to similar articles or videos.
- Profiling someone with FSHD in a magazine, podcast or the media of your choice :)
Ryan Levinson
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Sailing Across the Pacific with Muscular Dystrophy, from Outside Magazine.
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His YouTube channel is here
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This was the first profile of someone with FSHD that I saved. Inspiration for this inspiration list.
Chris Carrino
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Documentary and interview by Woj.
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Play-by-play announcer of the Nets.
Chip Wilson
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He was interviewed by Tim Ferriss in his podcast. It is exciting to hear someone with that drive talk about how he wants to focus his energy on FSHD research.
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Tía Gaby sent me this other profile
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Founder of Lululemon.